hi all im a mum of an a 11yr old daughter
who has just been diagnosed with tics after many years of fighting that something wasnt right,
dont know much about it but had many stressfull years of bad behavour,low self asteem and very depressed at times going through cahms at the mo and waiting for medication from her doctor she has alot of issues and cant get my head round it.can someone please explain a little about tics and other behavours associated with the illness my heart is breaking for my daughter.many thanks xx
can anyone tell me the help that is available out there ive been informed to apply for dla i live in the leeds area x
Just wondering what you mean by "diagnosed with tics", is that a diagnosis of Tourette's Syndrome (TS)? Or some other acute/chronic tic disorder? Does your daughter present OCD-like symptoms? I hope that the medication that's being prescribed helps in some way. I too am a newly diagnosed TS ticcer, so understand how hard things must be for both you, and your daughter right now.
Generally speaking, tics are a contractions of the muscles (commonly in the face, such as blinking, facial grimacing, mouth opening, nasal flaring ect.) that cannot be helped (they are involuntary); people with TS often describe the feeling of a tic similar to that of holding a sneeze in, or holding your breath. Imagine trying to hold that in, it's not going to be possible for long periods of time. It is also true that those with TS who hold tics in, will have an outburst of tics once they are relieved.
Associated disorders that are common alongside TS are (your child may present all, or none of the following):
ADHD (Attention Deficit Hyperactivity Disorder) - A developmental disorder characterised by the existence of attentional problems and hyperactivity.
OCD (Obsessive Compulsive Disorder) - An anxiety disorder characterised by by repetitive behaviours aimed at reducing associated anxieties.
AS (Aspergers Syndrome) - An autism spectrum disorder characterised by significant difficulties in social interaction, alongside restricted and repetitive patterns of behaviour and interests.
ODD (Oppositional Defiant Disorder) - An ongoing pattern of anger guided disobedience, hostilely defiant behaviour toward authority figures which goes beyond the bounds of normal childhood behaviour.
I have done some brief research into organisations and help groups in the Leeds area that may be of help/assistance to you, they are:
Leeds Citizens Advice Bureau - www.leedscab.org.uk
MenCap Leeds - www.leedsmencap.org.uk
Leeds Welfare Rights - www.leeds.gov.uk/Page.aspx?pageIdentifi ... 9100354ACC
Leeds Support Group (In Progress) - www.tourettes-action.org.uk/group-meetings
Feel free to message me if you think there's anything else I might be able to help with!